Caleb’s Crusaders Foundation formed to help raise awareness of a very rare disease called HLH (hemophagocytic lymphohistiocytosis), which is a hystiocytic disorder. My name is Amanda Tokarski and in April of 2010 my son, Caleb, passed away from HLH after an incredible and scary battle.
There is no government funding for research or a cure for HLH. With your support we can change that. We can reach those who make research decisions and doctors who diagnose, and draw attention to the effects of this terrible, deadly disease.
We welcome you to join us at future fund raisers and other events. To read Caleb’s full story, please visit CaringBridge.
